Living with genetic conditions like Dyskeratosis congenita, Ehlers-Danlos Syndrome (EDS), and comorbidities like Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) means my world is mostly confined to the four walls of my room. Most days, I navigate a world that moves at a pace dictated…
Author: The Disabled Mermaid
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Saying Goodbye to Beloved Medical Professionals: Impact and Transition
Acknowledging the Good Most of the time, when we talk about medical professionals, we find ourselves discussing the difficulties we face within the medical system. These conversations are understandable and definitely needed. However, today I want to shift the focus to the incredible medical professionals who truly…
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Silent Echoes: Two year hysterectomy Grief Poem
On this solemn two-year anniversary of my hysterectomy, I offer this heartfelt poem as a tribute to today and the profound journey it represents. ” I never heard you, but I feel you. you never spoke, but i feel you. i never knew you, but i love you.” – the…
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I SURVIVED BEING UNDIAGNOSED FOR YEARS.
a small glimpse into my story My name is Kat. From a young age, I was diagnosed with one thing after another. Unfortunately, these diagnoses did not explain all my symptoms, leaving most of my health issues undiagnosed. This situation led to abuse through the school and medical systems…