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The Invisible Boundaries: My Life with Chronic Conditions

Living with genetic conditions like Dyskeratosis congenita, Ehlers-Danlos Syndrome (EDS), and comorbidities like Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) means my world is mostly confined to the four walls of my room. Most days, I navigate a world that moves at a pace dictated not…

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Saying Goodbye to Beloved Medical Professionals: Impact and Transition

  Acknowledging the Good     Most of the time, when we talk about medical professionals, we find ourselves discussing the difficulties we face within the medical system. These conversations are understandable and definitely needed. However, today I want to shift the focus to the incredible medical professionals who truly…

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