7 min read 0
206

The Invisible Boundaries: My Life with Chronic Conditions

Living with genetic conditions like Dyskeratosis congenita, Ehlers-Danlos Syndrome (EDS), and comorbidities like Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) means my world is mostly confined to the four walls of my room. Most days, I navigate a world that moves at a pace dictated not…

Skip to content