Living with genetic conditions like Dyskeratosis congenita, Ehlers-Danlos Syndrome (EDS), and comorbidities like Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) means my world is mostly confined to the four walls of my room. Most days, I navigate a world that moves at a pace dictated not…
Tag: Resilience
2 min read
0
1065
Silent Echoes: Two year hysterectomy Grief Poem
On this solemn two-year anniversary of my hysterectomy, I offer this heartfelt poem as a tribute to today and the profound journey it represents. ” I never heard you, but I feel you. you never spoke, but i feel you. i never knew you, but i love you.” – the…